Learning from lives and deaths – People with a learning disability and autistic people (LeDeR)

LeDeR is a national service improvement programme looking at the lives and deaths of people with a learning disability and autistic people. The programme aims to improve care, reduce health inequalities and prevent premature mortality.

People with a learning disability die on average 20 years younger than the wider population. To understand why this is happening, we undertake a formal review every time we are notified that a person with a learning disability or an autistic person has died. As part of the review, we look at the health and social care services the person was receiving, we talk to family and carers, and we review care notes. The review helps us find out what is working well for our communities, and what we could be doing better. It helps drive improvements for the communities based in Leicester, Leicestershire and Rutland.

Our LeDer Top Ten Learning into Action Points

We have completed over 340 reviews across LLR since we started running the LeDeR programme locally in 2020. These reviews have given us a very clear picture of some of the areas we need to work on to improve outcomes for our communities. We have identified ‘Top Ten Learning into Action Points’ for healthcare professionals to focus on to ensure our communities live good, happy lives. 

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